Špela’s Story

Špela’s Story

A Mother’s Journey: Raising children with atopic dermatitis and overcoming the hurdles of misdiagnosis and delayed treatment.   Welcome to Špela’s world. Her story is not just about skin but about resilience, family, and the unseen battles of living with the...
Noel’s Experience

Noel’s Experience

Living with Pemphigus Vulgaris and Dealing with Barriers to Accessible Care and Affordable Treatments Noel Mudibo’s life is a testament to resilience. In the face of Pemphigus Vulgaris (PV), a debilitating skin condition, and the challenges of accessing adequate...
Katie’s Journey

Katie’s Journey

Living with a Rare Skin Disease (CMTC) and Overcoming the Challenges that Come With It Katie’s life story is unique, having been born with a very rare skin disease known as Cutis Marmorata Telangiectatica Congenita (CMTC). Growing up in rural Canada, where...