Stories of Resilience
Explore the powerful journeys of individuals living with skin conditions and diseases across the globe. These stories unveil the true challenges beyond the physical symptoms – the struggles from lack of timely diagnoses, lack of accessible or affordable treatments, and the often overlooked mental health impacts. Each account offers a window into personal battles and triumphs, highlighting why our collective voice and action are vital.
Špela’s Story
Slovenia
Špela, a mother from Slovenia, founded an organization to champion the cause of families grappling with Atopic Dermatitis (AD). Her dedication stems from her personal story – a mother of four, with her two youngest sons battling the daily burdens that come with this condition.
Noel’s Experience
Kenya
In 2016, Noel’s life took a dramatic turn with the onset of Pemphigus Vulgaris (PV). Misdiagnosed and unable to afford specialist care, he endured a year of intense pain and social stigma. “People thought I was HIV positive,” Noel shares, highlighting the misconceptions and isolation he faced.
Katie’s Journey
Canada
Katie’s life story begins uniquely, born with a rare skin disease known as Cutis Marmorata Telangiectatica Congenita (CMTC). This journey isn’t simply about managing her skin condition; it is about learning to navigate a complex healthcare system and advocating for the right to proper care.