#Not Just My Skin Campaign
March & April 2024
Our #NotJustMySkin campaign ran in March & April 2024 and was hugely successful in raising global awareness of key problems facing people with skin conditions and diseases:
- Without timely diagnosis, people can’t receive the right care and treatment
- Treatments are unaffordable and inaccessible for many people
- People with skin conditions experience poor mental health outcomes
The #NotJustMySkin campaign made one thing clear: people around the world demand action for those impacted by skin conditions and diseases and are committed to building a future where these health challenges are no longer minimized
people saw the campaign
views of the campaign
people in 130 countries signed the open letter
Nearly 7,000 people signed an Open Letter to Policy Makers demanding action.
Building on this momentum, we are now championing a World Health Assembly Resolution – a historic opportunity to transform global skin health policy.
Learn more about this initiative and join our campaign for a #SkinDiseasesResolution
Stories of Resilience
Explore the powerful stories of individuals living with skin conditions and diseases across the globe. These unveil the true challenges beyond the physical symptoms – the struggles from lack of timely diagnosis, lack of accessible or affordable treatments, and the often overlooked mental health impacts. Each account offers a window into personal challenges and triumphs, highlighting why our collective voice and action are vital.
Špela’s Story
Slovenia
Špela, a mother from Slovenia, founded an organization to champion the cause of families grappling with Atopic Dermatitis (AD). Her dedication stems from her personal story – a mother of four, with her two youngest sons battling the daily burdens that come with this condition.
Noel’s Experience
Kenya
In 2016, Noel’s life took a dramatic turn with the onset of Pemphigus Vulgaris (PV). Misdiagnosed and unable to afford specialist care, he endured a year of intense pain and social stigma. “People thought I was HIV positive,” Noel shares, highlighting the misconceptions and isolation he faced.
Katie’s Journey
Canada
Katie’s life story begins uniquely, born with a rare skin disease known as Cutis Marmorata Telangiectatica Congenita (CMTC). This journey isn’t simply about managing her skin condition; it is about learning to navigate a complex healthcare system and advocating for the right to proper care.